Genetics Web Resources
Of all the sites listed here, this is the best one for easy access to information and resources; it has clinical reviews and a geographical listing of laboratories and clinical genetic resources
Boston University Center for Human Genetics
A resource for clinical consultation and molecular and chromosome testing
University of Kansas Medical Center Genetics Education Center
Provides links to Web sites pertaining to genetics
CDC National Center on Birth Defects and Developmental Disabilities
Provides information on birth defects research and surveillance
National Coalition for Health Professional Education in Genetics
Online Mendelian Inheritance in Man
One of the best sources of information on specific genetic diseases and syndromes
The American Academy of Pediatrics Committee on Genetics
Includes policy statements on genetics and related issues and excellent links
Exceptional Parent Magazine
The Web site of this magazine describes it as having "33 award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities and the professionals who work with them."
Described on the Web site as "a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support."
Described on the Web site as an international coalition comprising millions of people with a genetic condition and more than 600 advocacy, research, and health-care organizations that represent their interests.
Mothers United for Moral Support
877-336-5333 (parents only, please)
Described on the Web site as "a national parent-to-parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition."
National Organization for Rare Diseases
Described on the Web site as "a unique federation of voluntary health organizations dedicated to helping people with rare 'orphan' diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service."